Data availability is under pressure
Patients depend on data for quality and continuity of care.
Professionals depend on data for clinical decisions.
Meanwhile, ensuring reliable access to information is becoming a structural challenge.
Forces reshaping healthcare
Clinical information is distributed across many specialised systems.
Professionals often need to navigate multiple platforms to reconstruct a complete patient view.
Studies show physicians now spend up to twice as much time on documentation and digital systems as with patients, increasing administrative burden and affecting both care efficiency and patient engagement.
Care increasingly takes place beyond hospital walls.
Remote monitoring and digital care pathways allow patients to be followed at home while multiple care professionals collaborate around the same patient.
The global remote patient monitoring market is expected to grow more than fourfold in 2030, significantly increasing the volume of clinical data generated outside traditional care settings.
Healthcare organisations are increasingly required to share data across institutional boundaries.
New regulatory frameworks are establishing infrastructures and obligations for health data exchange.
Initiatives such as the European Health Data Space and national programs like BIHR are introducing legal requirements for cross-organisational health data availability.
AI depends on access to large volumes of clinical data.
Reliable, accessible, and fluid information is essential to develop and deploy Artificial Intelligence in healthcare.
Yet studies estimate that up to 80% of healthcare data remains unstructured or difficult to access, limiting the practical impact of AI.
Healthcare data is increasingly reused beyond direct patient care.
Research, innovation, and health system management rely on access to large volumes of clinical data.
More than 30% of newly approved medicines now rely on real-world data or real-world evidence as part of regulatory evaluation.